Patient Engagement by CanBiotech Innovations
Models of Patient Engagement
An evolving directory of patient engagement
models, strategies and organizations.
Contact us to be added to this directory.
Patient Focused Medicines Development
The PFMD network aggregates existing knowledge and tools and is identifying good practices in the area of patient engagement.
Stage of Engagement: Full Life Cycle
Engagement Strategy: Integrating the voice of the patient across the lifecycle of medicine through the engagement of an independent global coalition of health stakeholders.
Stakeholders Engaged: Stakeholders across the pharmaceutical value chain.
Impact: Patient Centric Innovation
Technology Platform: Patient Engagement Management Suite (PEM Suite) is a hub of co-created tools, resources and practices to help stakeholders adopt effective patient engagement strategies.
Transparency Life Sciences
Patients, their caregivers, and health care professionals all contribute to the design of trials using an online crowdsourcing tool.
Stage of Engagement: Development
Engagement Strategy: Crowd Science
Stakeholders Engaged: Patient, Patient Advocacy Groups
Impact: Patient Centric Innovation
Technology Platform: Qualified crowdsourcing participants respond to key issues of clinical trial design, enabling discovery of key considerations that can inform and enhance the protocol development process to encourage greater engagement with the trial and better meet trial endpoints.
Parkinson's Well Being Map
The Map allows patients to record and monitor their Parkinson’s symptoms, allowing patients to highlight the symptoms that are of most concern and list the most important questions to ask at their next consultation.
Stage of Engagement: Health Management
Engagement Strategy: Resource Provision
Stakeholders Engaged: Patient, Caregiver
Impact: Patient Centric Healthcare
Technology Platform: Parkinson's Well-Being Map™ can be completed online and saved on the patient's personal computer.
PatientsLikeMe
PatientsLikeMe is a personalized health network. More than 750000+ people living with 2,900 conditions have generated more than 43 million data points, creating real-world evidence enabling research studies.
Stage of Engagement: Health Management
Engagement Strategy: Engagement via Technology
Stakeholders Engaged: Research, Patient, Caregiver
Impact: Patient Centric Innovation and Self Management
Technology Platform: Online health network enabling patients to find information, receive personalized education and share their real-world experiences including treatment evaluation.
HealthWatch 360
HealthWatch 360 is a scientifically designed app that helps people eat well. The app monitors 30+ nutrients, counts calories and tracks 500+ symptoms, and provides clinical nutrition specific to user health goals.
Stage of Engagement: Health Management
Engagement Strategy: Engagement via Technology
Stakeholders Engaged: Patient, Caregiver
Impact: Patient Self Management
Technology Platform: HealthWatch 360 is designed by nutrition experts and provides personalized nutrition recommendations based on health goals and clinical guidelines.
Myeloma Crowd Research Initiative
The Myeloma Crowd Research Initiative (MCRI) is a new approach to funding cancer research; combining the skill and knowledge of leading myeloma specialists with the patient perspective and supportive patient social communities to select and fund promising research projects in myeloma.
Stage of Engagement: Research
Engagement Strategy: Crowd Funding
Stakeholders Engaged: Researcher, Patient, Patient Communities
Impact: Patient Centric Innovation
MyCancerIQ
Cancer risk assessment and personalized action plans. A series of risk assessments estimate the risk of cancer compared with other Ontarians of the same sex age 40 and over. At the end of each assessment, users receive a personalized risk assessment and action plan with tips and resources based on their personal risk factors.
Stage of Engagement: Health Management
Engagement Strategy: Engagement via Technology
Stakeholders Engaged: Patient
Impact: Patient Self Management
Technology Platform: Designed by Cancer Care Ontario (CCO), My CancerIQ is a website that helps people understand their risk for cancer and what actions can be taken to lower the risk.
MeYou Health
Technology that encourages healthy eating, physical activity, stress management and other behaviors through daily email and text-message suggestions, and encourages individuals to engage their social network.
Stage of Engagement: Health Management
Engagement Strategy: Engagement via Technology
Stakeholders Engaged: Patient
Impact: Patient Self Management
Technology Platform: Daily Challenge is a social well-being experience that allows people to improve their health in one small way each day. Participants are urged to complete simple challenges and share the experience.
Lilly Open Innovation Challenge
Eli Lilly recently launched an open innovation challenge to encourage individuals and teams to identify and submit pioneering digital health solutions aimed at transforming inflammatory bowel disease (IBD) care.
Stage of Engagement: Design
Engagement Strategy: Crowd Science
Stakeholders Engaged: Innovator
Impact: Patient Centric Innovation
Healthy Aging and Independent Living Lab
The Healthy Aging and Independent Living Program within the Kogod Center on Aging conducts research to understand the aging process, enable the translation of interventions into clinical practice and develop technology to promote independence.
Stage of Engagement: Health Management
Engagement Strategy: Immersions/Observations, Education, Research
Stakeholders Engaged: Patient, Caregiver
Impact: Patient Centric Innovation
Interprofessional Health Mentors Program
A 9-month program for students from different health disciplines to learn from and with a mentor who has a chronic condition or disability or a caregiver.
Stage of Engagement: Health Management
Engagement Strategy: Immersions/Observations
Stakeholders Engaged: Patient, Caregiver
Impact: Patient Centric Healthcare