Models of Patient Engagement

An evolving directory of patient engagement
models, strategies and organizations. 

Contact us to be added to this directory.

Patient Focused Medicines Development

The PFMD network aggregates existing knowledge and tools and is identifying good practices in the area of patient engagement.

Stage of Engagement: Full Life Cycle

Engagement Strategy: Integrating the voice of the patient across the lifecycle of medicine through the engagement of an independent global coalition of health stakeholders.

Stakeholders Engaged: Stakeholders across the pharmaceutical value chain.

Impact: Patient Centric Innovation

Technology Platform: Patient Engagement Management Suite (PEM Suite) is a hub of co-created tools, resources and practices to help stakeholders adopt effective patient engagement strategies.

Transparency Life Sciences

Patients, their caregivers, and health care professionals all contribute to the design of trials using an online crowdsourcing tool.

Stage of Engagement: Development

Engagement Strategy: Crowd Science

Stakeholders Engaged: Patient, Patient Advocacy Groups

Impact: Patient Centric Innovation

Technology Platform: Qualified crowdsourcing participants respond to key issues of clinical trial design, enabling discovery of key considerations that can inform and enhance the protocol development process to encourage greater engagement with the trial and better meet trial endpoints.

Parkinson's Well Being Map

The Map allows patients to record and monitor their Parkinson’s symptoms, allowing patients to highlight the symptoms that are of most concern and list the most important questions to ask at their next consultation.

Stage of Engagement: Health Management

Engagement Strategy: Resource Provision

Stakeholders Engaged: Patient, Caregiver

Impact: Patient Centric Healthcare

Technology Platform: Parkinson's Well-Being Map™ can be completed online and saved on the patient's personal computer.

PatientsLikeMe

PatientsLikeMe is a personalized health network. More than 750000+ people living with 2,900 conditions have generated more than 43 million data points, creating real-world evidence enabling research studies.

Stage of Engagement: Health Management

Engagement Strategy: Engagement via Technology

Stakeholders Engaged: Research, Patient, Caregiver

Impact: Patient Centric Innovation and Self Management

Technology Platform: Online health network enabling patients to find information, receive personalized education and share their real-world experiences including treatment evaluation.

HealthWatch 360

HealthWatch 360 is a scientifically designed app that helps people eat well. The app monitors 30+ nutrients, counts calories and tracks 500+ symptoms, and provides clinical nutrition specific to user health goals.

Stage of Engagement: Health Management

Engagement Strategy: Engagement via Technology

Stakeholders Engaged: Patient, Caregiver

Impact: Patient Self Management

Technology Platform: HealthWatch 360 is designed by nutrition experts and provides personalized nutrition recommendations based on health goals and clinical guidelines.

Myeloma Crowd Research Initiative

The Myeloma Crowd Research Initiative (MCRI) is a new approach to funding cancer research; combining the skill and knowledge of leading myeloma specialists with the patient perspective and supportive patient social communities to select and fund promising research projects in myeloma.

Stage of Engagement: Research

Engagement Strategy: Crowd Funding

Stakeholders Engaged: Researcher, Patient, Patient Communities

Impact: Patient Centric Innovation

MyCancerIQ

Cancer risk assessment and personalized action plans. A series of risk assessments estimate the risk of cancer compared with other Ontarians of the same sex age 40 and over. At the end of each assessment, users receive a personalized risk assessment and action plan with tips and resources based on their personal risk factors.

Stage of Engagement: Health Management

Engagement Strategy: Engagement via Technology

Stakeholders Engaged: Patient

Impact: Patient Self Management

Technology Platform: Designed by Cancer Care Ontario (CCO), My CancerIQ is a website that helps people understand their risk for cancer and what actions can be taken to lower the risk.

MeYou Health

Technology that encourages healthy eating, physical activity, stress management and other behaviors through daily email and text-message suggestions, and encourages individuals to engage their social network.

Stage of Engagement: Health Management

Engagement Strategy: Engagement via Technology

Stakeholders Engaged: Patient

Impact: Patient Self Management

Technology Platform: Daily Challenge is a social well-being experience that allows people to improve their health in one small way each day. Participants are urged to complete simple challenges and share the experience.

Lilly Open Innovation Challenge

Eli Lilly recently launched an open innovation challenge to encourage individuals and teams to identify and submit pioneering digital health solutions aimed at transforming inflammatory bowel disease (IBD) care.

Stage of Engagement: Design

Engagement Strategy: Crowd Science

Stakeholders Engaged: Innovator

Impact: Patient Centric Innovation

MIT Medicine Hackathon

MIT Hacking Medicine’s mission is to teach and enable healthcare entrepreneurship and digital strategies to solve health problems.

Stage of Engagement: Design

Engagement Strategy: Crowd Science

Stakeholders Engaged: Innovator

Impact: Patient Centric Innovation

Healthy Aging and Independent Living Lab

The Healthy Aging and Independent Living Program within the Kogod Center on Aging conducts research to understand the aging process, enable the translation of interventions into clinical practice and develop technology to promote independence.

Stage of Engagement: Health Management

Engagement Strategy: Immersions/Observations, Education, Research

Stakeholders Engaged: Patient, Caregiver

Impact: Patient Centric Innovation

Interprofessional Health Mentors Program

A 9-month program for students from different health disciplines to learn from and with a mentor who has a chronic condition or disability or a caregiver.

Stage of Engagement: Health Management

Engagement Strategy: Immersions/Observations

Stakeholders Engaged: Patient, Caregiver

Impact: Patient Centric Healthcare