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 Patient Health and Engagement Blog   Show all: Patient Health and Engagement Blog


Visit CanBiotech's new patient engagement and engaged thinking community. Participate in the development of the concept of engaged thinking in health innovation and the identification of "lead patients".
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FDA Sets Inaugural Meeting of First-Ever Patient Engagement Advisory Committee
An FDA advisory committee will focus on patient-related issues. On Oct. 11-12, 2017, FDA will hold the inaugural meeting of the new Patient Engagement Advisory Committee (PEAC). The topic will be the challenges of clinical trial design, conduct, and reporting identified by patients.
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5 Patient Engagement Terms Shaping Value-Based Care

From chronic disease management to risk stratification, these patient engagement terms are critical to delivery of patient centric value-based health care.
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The future of the clinical trial – collaboration and patient centricity
A webinar hosted by pharmaphorum in conjunction with INC Research looked into the question of how greater patient centricity, collaboration between stakeholders and new technology are re-shaping clinical trials.
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What should providers look for when choosing patient engagement technology?
Consumer-grade medical devices are being developed with sophisticated sensors, which collect volumes of data about diet, sleep, heart rate, temperature, blood sugar, and other personal health metrics.
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DIA Consideration Guide to Implement Patient Centric Intiatives
This document was designed as a resource for pharmaceutical companies seeking to launch or further develop patient-centric intiatives to support health innovation.
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Using data and technology to improve healthcare ecosystems
Reorienting away from product development toward a holistic approach to patients demands the convergence of data from every part of the healthcare system.
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Increasing patient engagement in healthcare service design: a qualitative evaluation of a co-design programme in New Zealand
Engaging rural residents in patient-centered health care research
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Using Design Thinking to Improve the ER
Learn how Whiteriver Indian Hospital in Arizona employed design thinking to decrease the number of patients who leave the ER without treatment while saving money.
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Seniors for Seniors: A Mentorship Program to Prevent Social Isolation and Enable Healthy Living
Toolkit
A 5 seminar series to engage seniors on the topic of social isolation and enable participants to design a healthy living social network. The mentorship programs seeks seniors to empower other fellow seniors through discussion, analysis and social innovation.
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Redesigning the Patient Journey through Design Thinking
A design company was hired to speed up the diagnostics time for breast cancer patients in a Norwegian hospital. The result? A reduced waiting time by 90%.
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Being patient-centric in a digitizing world
A Danish pharma company’s strong customer focus and determined digital drive have important lessons for other businesses.
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Leveraging New Technologies for Better Diabetes Care
Mobile device apps and online portals can expand the number of people who receive diabetes care and optimize how they prevent and treat their diabetes. This form of diabetes care can cater to millennials who are accustomed to using technology to address their needs and to underserved communities that cannot easily access doctor’s visits.
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Lessons for Patient Driven Innovation: Rebuild Personas According to Your Next Product Innovation
By exclusively focusing on your persona’s one main need and trying hard to fulfill that need with your product, you can build the next feature with a more focused vision.
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Social Media and the Patient Experience
As patients continue to turn to online resources for health care information to guide their care decisions, it is becoming increasingly important for radiologists to engage with patients online via social media platforms.
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Important new cancer treatments approved by Health Canada marred by major provincial reality disconnect for patients
Patient access to innovative new cancer treatments seriously limited by provincial funding recommendations across Canada Health Canada recently conditionally approved an advanced new treatment option

What Pharma Can Learn from Patients: A Global Patient Advocate Survey
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The Patient Voice within Biopharma
Patient Leadership Councils (PLCs) within life science companies and other healthcare organizations aim to enable for the patient's voice to take root within biopharmaceutical organizations.
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It takes two to tango: how shared decision making can help patients and providers make better decisions together
Shared Decision Making
Thursday, September 15, 2016 at 1 PM in Paul Brest Hall, Stanford University.
You make decisions every day. Some are good; some are not as good. Did you know there is a science to decision making that can help people make better decisions more often? In collaboration with Eli Lilly, Medicine X will facilitate a half-day design workshop about improving decision making for patients and providers.
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Unique Patient Challenges & Support Solutions in Rare Disease
People who have been diagnosed with a rare disease share their stories, alongside a pharmaceutical executive and health psychology researcher; the authors further reviewed the most recent and relevant adherence and self-management research in rare disease.
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Rethink Partnerships with Patient Advocates
Listen to a panel discussion led by Cara Thompson, Director of Advocacy, Celgene, Tammy Russo, Patient Advocacy, Syndax, and Parisa Sanandaji, Associate Director of Patient Advocacy & Professional Relations, Boehringer Ingelheim focused on the most important pharma-stakeholder collaboration: pharma’s relationship with patient advocacy groups.
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Boehringer Ingelheim launches 'gamified' COPD initiative
The program
encourages and rewards patient driven disease management
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BMS reaches out to patients: The company’s Aspire program is attempting to bring BMS even closer to patients, while improving site relationships, operational analytics, and the value of data collected.
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Enabling people-powered health: Radboudumc and Saint Elizabeth Community Enterprise team up to accelerate and magnify global health innovation and impact.
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Stakeholders need to work together to embed patients in medicines R&D
Anton (Tony) Hoos – Head of Medical for Amgen Europe – explains why stakeholders need to work together in medicines development.
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Focus on the Patient Voice and Compassionate Use in Clinical Trials
Janssen is one company putting programs in place to make sure the patient voice is heard. One area in which the company is leading change in the industry is in the area of compassionate use.
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Patient Partnership Principles
The PatientsLikeMe Team of Advisors introduced the Partnership Principles, outlining ways to make the most of the relationships with the many people patients encounter in their health journey.
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Shared Decision Making for Successful Patient Engagement
The principal of shared decision making (SDM) promotes collaboration between clinician and patient among different clinical settings. A conceptual SDM strategy for improving patient engagement in neurology was created by researchers at the University of Maryland School of Pharmacy in Baltimore, Maryland, and presented at the 2016 annual meeting of the American Academy of Neurology (AAN).
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Achieving Patient Engagement with Technology
By incorporating wearables and sensors, remote patient monitoring, caregiver collaboration tools into the model of patient care, it has become possible to dramatically increase patient involvement.
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3 Ways Technology Can Help Treat Patients as Consumers
Technology can play a key role in meeting the needs of both patients/consumers and healthcare system organizations.
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Listen Up: Surveying Patients To Shape Better Designs
Designing treatment spaces with patients.
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The Voice of Patients
Patient stories underscore the need for precision medicine
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Designing person-centered care for the patient journey
Critical is an understanding of the “patient journey” to source opportunities for patient engagement.
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Communicating with Patients
Learn about how making a few simple changes to our health care lexicon can help frame diagnoses in a more positive light and help patients establish a stronger sense of identity.
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Healthcare Industry Must Step up Efforts to Enable Successful Consumerization
US consumers appear ambivalent regarding what it means to be proactive or engaged in personal health, says Frost & Sullivan
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Precision Medicine: Patient-Centric R&D necessitating education, communication and engagement across diverse populations.
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Type 2 diabetes, hypertension, metabolic syndrome, obesity and cardiovascular disease, have a genetic basis and may be triggered by the interaction between a person’s genes and his/her diet.
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Novo Nordisk has made patient centricity a central focus of activities incorporating the concept in the organizational structure. A dedicated team focuses on improving patient care, education, engagement, and overall experience. At Janssen Research & Development, the company has developed a new scientific approach, called "disease interception", to not only assist patients living with the disease, but allow for intervention earlier to prevent progression to disease. Read more about knowledge sharing, patient programs, and new research techniques across the pharmaceutical industry as the patient centric drug discovery and development paradigm takes root.
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Patient Narratives
Patient narratives allow stakeholders to hear the voice of patients and understand their needs and expectations. Patients cite and share their experiences when asked to complete satisfaction surveys, interact on social media, on doctor review sights, and in compliment and complaint letters. What can we learn from patient narrative use during health service delivery; how can narratives be used to inform upstream drug design?
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FOOD LABELING INTERVENTION INCREASES SALES OF HEALTHY FOODS
The labeling and in-store promotion of both healthy foods and healthier low-sodium, low-fat, or lower-sugar-content food choices can increase sales of promoted food items, according to a study by researchers at Johns Hopkins University. The findings suggest an economically feasible model for promoting healthier food purchases and are published on the website of the Journal of Nutrition Education and Behavior.
“Many people, particularly those who live in low-income neighborhoods, have limited access to healthy foods. We wanted to develop an intervention that could help make healthy choices easier for consumers,” said Pamela Surkan, lead author of the study and assistant professor in the Department of International Health at the university’s Bloomberg School of Public Health.
The Eat Right-Live Well campaign was developed and studied by a collaboration of researchers from the Bloomberg School, the university’s Carey Business School, and the Johns Hopkins Center for a Livable Future.
Source: John Hopkins University
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The Diabetes UnConference
A patient-peer conference enabling for discussion, empowerment and health management.

“Future Signs”: How medical technology is disrupting pharma
Download the white paper to learn how to:
Adopt a risk based approach for a cheaper way to clean your data, ensure optimum data quality and patient safety
•Integrate real world and real time data for faster data generation
•Overcome rising R&D costs by utilising big data to identify patient sub groups
•Encourage patient participation by virtualising parts of trials, reduce patient burden and enhance data quality, with mobile and wearable devices

Biomimicry: What lessons can we learn from nature?
The ideas from nature may provide clues to addressing our most pressing needs. What we may come to understand is that the ideas underlying the solutions sought may have already been invented from "biological mentors".
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21st Century Cures Act: Seeking to Engage Patients
The 21st Century Cure Act, promises to promote the development and hasten the approval of new drugs and devices-particularly for treatments targeting cancer and rare diseases. The goal is to place the patient in the center of drug discovery and development.
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Benefits of Biodiversity to Humans
Biodiversity driven research includes bioengineering, searching for new medicines, improving human nutrition, bioremediation. Read more about biodiversity, implications for humans, and opportunities to preserve our world's biodiversity.

Patient Solutions
Following the patient journey from diagnosis, disease management including treatment choice and optimization, and eventual health management.
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JOHNS HOPKINS EPILEPSY STUDY IS FIRST RESEARCHKIT APP TO USE APPLE WATCH
--EpiWatch is an epilepsy research study that monitors seizure symptoms with Apple Watch to improve seizure detection, improve medication adherence and enhance quality of life for those who suffer from seizures.
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Monitoring Patient Activity
(Graphic: Business Wire)
A recent study by PatientsLikeMe and Biogen monitored walking activity in people with Multiple Sclerosis (MS). Participants were also surveyed about their experience with the study and attitudes about using a fitness tracker.

DiabetesMine™ Test Kitchen
A video product review site for and by people affected by diabetes. Patients can view and comment on reviews of diabetes related products used by fellow patients. A noteworthy model of patient engagement-allowing for a discussion of personally driven health management strategies.

RxEOB: Empowering Patients through Communication
A recent interview by Dr. Minna Damani, Director of CanBiotech Innovations of Mr. Robert Oscar, CEO and President of RxEOB revealed significant trends with respect to patient communication and stakeholder engagement.
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Exploring open innovation with a patient focus in drug discovery: an evolving paradigm of patient engagement
It is suggested in this article that patient engagement should occur further upstream during the drug discovery stage. ‘Lead patients’, namely those patients who are proactive with respect to their health, possess knowledge of their disease and resulting symptoms. They are also well informed about the conventional as well as non-conventional treatments for disease management; and so can provide a nuanced perspective to drug design.
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http://informahealthcare.com/doi/abs/10.1517/17460441.2015.1037271

FDA taps PatientsLikeMe to test the waters of social media adverse event reporting
PatientsLikeMe has announced a research partnership with the FDA as a way to generate adverse event reports.

The Specialty Care Model
Specialty pharmacies help close the communication and coordination gap by providing and supporting a care model to empower patients and better able to manage their health.
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mHealth Engages Heart Failure Patients
Patients who use mobile-based telemonitoring systems for heart failure (HF) self-management feel...
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 Health News   Show all: Health News

Patients face rising costs for epipen allergy drug

Commercially insured patients who use the life-saving epinephrine autoinjector known as 'EpiPen' have experienced skyrocketing out-of-pocket costs since 2007, according to research.

A little nudge may provide a big boost to flu vaccination rates

Currently, only 44 percent of adults in the United States receive an annual flu vaccination. But, a new study suggests that a simple behavioral economics technique may be able to help. In the study, researchers programmed electronic health records (EHR) to alert care providers when a patient was eligible, and prompt them to choose to 'accept' or 'decline' a flu vaccination order. Results showed a 37 percent relative increase in vaccinations from the prior year.

Implementing large-scale teleretinal diabetic retinopathy screening program

Can a large-scale, primary care-based teleretinal diabetic retinopathy screening (TDRS) program reduce wait times for screening and improve the timeliness of care in the Los Angeles County Department of Health Services, the largest publicly operated county safety net health care system in the United States?

Men with learning difficulties four times more likely to die of testicular …

People with learning difficulties are 4 times more likely to die of testicular cancer than the general population. This is the first work relating cancer deaths to learning difficulties, with researchers now testing if this finding applies to all cancers.

Concern over high US prescribing levels of common drug linked to dementia

A new analysis raises concern over high prescription rates in the USA of a common drug used to treat overactive bladder. The drug, oxybutynin, when taken orally, is consistently linked with cognitive impairment and dementia in the elderly. The analysis shows that oxybutynin, is prescribed in more than a quarter of cases of overactive bladder (27.3%), even though other more suitable drugs are available.

High burden of Iodine deficiency found in Israel’s first national survey

62% of school-age children and 85% of pregnant women in Israel have low iodine intakes, according to the country's first national iodine survey. Government funding and legislation, and a government-regulated program of salt or food iodization, are essential to reducing the deficiency, which poses a high risk of impaired neurological development.

Moderate drinking linked to lower risk of some -- but not all -- heart cond…

Moderate drinking is associated with a lower risk of several, but not all, cardiovascular diseases, finds a large study of UK adults. The finding that moderate drinking is not universally associated with a lower risk of all cardiovascular conditions suggests a more nuanced approach to the role of alcohol in prevention of cardiovascular disease is necessary.

Most remaining smokers in US have low socioeconomic status

After decades of declining US smoking rates overall, most remaining smokers have low income, no college education, no health insurance or a disability. About 15 percent of US adults -- more than 36 million -- continue to smoke cigarettes. Half to three-fourths of them have one or more low-socioeconomic disadvantages, and the lowest socioeconomic categories have the highest smoking rates. The study concludes that continuing tobacco use is now concentrated among the least advantaged portion of society.

Overcoming workplace barriers to breastfeeding

For mothers of new infants, going back to work may pose a number of obstacles to continued breastfeeding. Workplace policies affecting the ability to breastfeed -- and the role of nurse practitioners (NPs) in helping to overcome those obstacles -- are the topic of a new special article.

Global rise of multidrug resistant tuberculosis threatens to derail decades…

The rise of multidrug-resistant (MDR) and extensively drug-resistant (XDR) tuberculosis (TB) threatens to derail decades of progress in controlling the disease, according to a new report.

Use of mobile app reduces number of in-person follow-up visits after surger…

Patients who underwent ambulatory breast reconstruction and used a mobile app for follow-up care had fewer in-person visits during the first 30 days after the operation without affecting complication rates or measures of patient-reported satisfaction, according to a study.

 Patient Engagement Reports   Show all: Patient Engagement Reports

The Patient Is IN: Pharma’s Growing Opportunity in Patient Services
Key Findings from a Survey of 200+ Patient Services Executives in the Pharmaceutical Industry