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 Patient Health and Engagement Blog   Show all: Patient Health and Engagement Blog


Visit CanBiotech's new patient engagement and engaged thinking community. Participate in the development of the concept of engaged thinking in health innovation and the identification of "lead patients".
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Being patient-centric in a digitizing world
A Danish pharma company’s strong customer focus and determined digital drive have important lessons for other businesses.
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Leveraging New Technologies for Better Diabetes Care
Mobile device apps and online portals can expand the number of people who receive diabetes care and optimize how they prevent and treat their diabetes. This form of diabetes care can cater to millennials who are accustomed to using technology to address their needs and to underserved communities that cannot easily access doctor’s visits.
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Lessons for Patient Driven Innovation: Rebuild Personas According to Your Next Product Innovation
By exclusively focusing on your persona’s one main need and trying hard to fulfill that need with your product, you can build the next feature with a more focused vision.
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Social Media and the Patient Experience
As patients continue to turn to online resources for health care information to guide their care decisions, it is becoming increasingly important for radiologists to engage with patients online via social media platforms.
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Important new cancer treatments approved by Health Canada marred by major provincial reality disconnect for patients
Patient access to innovative new cancer treatments seriously limited by provincial funding recommendations across Canada Health Canada recently conditionally approved an advanced new treatment option

What Pharma Can Learn from Patients: A Global Patient Advocate Survey
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The Patient Voice within Biopharma
Patient Leadership Councils (PLCs) within life science companies and other healthcare organizations aim to enable for the patient's voice to take root within biopharmaceutical organizations.
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It takes two to tango: how shared decision making can help patients and providers make better decisions together
Shared Decision Making
Thursday, September 15, 2016 at 1 PM in Paul Brest Hall, Stanford University.
You make decisions every day. Some are good; some are not as good. Did you know there is a science to decision making that can help people make better decisions more often? In collaboration with Eli Lilly, Medicine X will facilitate a half-day design workshop about improving decision making for patients and providers.
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Unique Patient Challenges & Support Solutions in Rare Disease
People who have been diagnosed with a rare disease share their stories, alongside a pharmaceutical executive and health psychology researcher; the authors further reviewed the most recent and relevant adherence and self-management research in rare disease.
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Rethink Partnerships with Patient Advocates
Listen to a panel discussion led by Cara Thompson, Director of Advocacy, Celgene, Tammy Russo, Patient Advocacy, Syndax, and Parisa Sanandaji, Associate Director of Patient Advocacy & Professional Relations, Boehringer Ingelheim focused on the most important pharma-stakeholder collaboration: pharma’s relationship with patient advocacy groups.
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Boehringer Ingelheim launches 'gamified' COPD initiative
The program
encourages and rewards patient driven disease management
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BMS reaches out to patients: The company’s Aspire program is attempting to bring BMS even closer to patients, while improving site relationships, operational analytics, and the value of data collected.
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Enabling people-powered health: Radboudumc and Saint Elizabeth Community Enterprise team up to accelerate and magnify global health innovation and impact.
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Stakeholders need to work together to embed patients in medicines R&D
Anton (Tony) Hoos – Head of Medical for Amgen Europe – explains why stakeholders need to work together in medicines development.
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Focus on the Patient Voice and Compassionate Use in Clinical Trials
Janssen is one company putting programs in place to make sure the patient voice is heard. One area in which the company is leading change in the industry is in the area of compassionate use.
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Patient Partnership Principles
The PatientsLikeMe Team of Advisors introduced the Partnership Principles, outlining ways to make the most of the relationships with the many people patients encounter in their health journey.
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Shared Decision Making for Successful Patient Engagement
The principal of shared decision making (SDM) promotes collaboration between clinician and patient among different clinical settings. A conceptual SDM strategy for improving patient engagement in neurology was created by researchers at the University of Maryland School of Pharmacy in Baltimore, Maryland, and presented at the 2016 annual meeting of the American Academy of Neurology (AAN).
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The April 2016 Health Affairs theme issue on "Patients' and Consumers' Use Of Evidence offers a comprehensive examination of the issues related to engaging patients more fully in decisions about health care delivery, and provides a number of examples of how researchers hope to provide patients and consumers with better evidence to choose among their health care options. A number of articles are freely available by PCORI
http://www.pcori.org/events/2016/health-affairs-briefing-patients-and-consumers-use-evidence

Patient Experience: The sum of all interactions, shaped by an organization’s culture, that influence patient perceptions across the continuum of care. – The Beryl Institute

Achieving Patient Engagement with Technology
By incorporating wearables and sensors, remote patient monitoring, caregiver collaboration tools into the model of patient care, it has become possible to dramatically increase patient involvement.
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3 Ways Technology Can Help Treat Patients as Consumers
Technology can play a key role in meeting the needs of both patients/consumers and healthcare system organizations.
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Listen Up: Surveying Patients To Shape Better Designs
Designing treatment spaces with patients.
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The Voice of Patients
Patient stories underscore the need for precision medicine
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Designing person-centered care for the patient journey
Critical is an understanding of the “patient journey” to source opportunities for patient engagement.
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Communicating with Patients
Learn about how making a few simple changes to our health care lexicon can help frame diagnoses in a more positive light and help patients establish a stronger sense of identity.
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Healthcare Industry Must Step up Efforts to Enable Successful Consumerization
US consumers appear ambivalent regarding what it means to be proactive or engaged in personal health, says Frost & Sullivan
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Precision Medicine: Patient-Centric R&D necessitating education, communication and engagement across diverse populations.
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Type 2 diabetes, hypertension, metabolic syndrome, obesity and cardiovascular disease, have a genetic basis and may be triggered by the interaction between a person’s genes and his/her diet.
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Novo Nordisk has made patient centricity a central focus of activities incorporating the concept in the organizational structure. A dedicated team focuses on improving patient care, education, engagement, and overall experience. At Janssen Research & Development, the company has developed a new scientific approach, called "disease interception", to not only assist patients living with the disease, but allow for intervention earlier to prevent progression to disease. Read more about knowledge sharing, patient programs, and new research techniques across the pharmaceutical industry as the patient centric drug discovery and development paradigm takes root.
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Patient Narratives
Patient narratives allow stakeholders to hear the voice of patients and understand their needs and expectations. Patients cite and share their experiences when asked to complete satisfaction surveys, interact on social media, on doctor review sights, and in compliment and complaint letters. What can we learn from patient narrative use during health service delivery; how can narratives be used to inform upstream drug design?
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FOOD LABELING INTERVENTION INCREASES SALES OF HEALTHY FOODS
The labeling and in-store promotion of both healthy foods and healthier low-sodium, low-fat, or lower-sugar-content food choices can increase sales of promoted food items, according to a study by researchers at Johns Hopkins University. The findings suggest an economically feasible model for promoting healthier food purchases and are published on the website of the Journal of Nutrition Education and Behavior.
“Many people, particularly those who live in low-income neighborhoods, have limited access to healthy foods. We wanted to develop an intervention that could help make healthy choices easier for consumers,” said Pamela Surkan, lead author of the study and assistant professor in the Department of International Health at the university’s Bloomberg School of Public Health.
The Eat Right-Live Well campaign was developed and studied by a collaboration of researchers from the Bloomberg School, the university’s Carey Business School, and the Johns Hopkins Center for a Livable Future.
Source: John Hopkins University
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The Diabetes UnConference
A patient-peer conference enabling for discussion, empowerment and health management.

“Future Signs”: How medical technology is disrupting pharma
Download the white paper to learn how to:
Adopt a risk based approach for a cheaper way to clean your data, ensure optimum data quality and patient safety
•Integrate real world and real time data for faster data generation
•Overcome rising R&D costs by utilising big data to identify patient sub groups
•Encourage patient participation by virtualising parts of trials, reduce patient burden and enhance data quality, with mobile and wearable devices

Biomimicry: What lessons can we learn from nature?
The ideas from nature may provide clues to addressing our most pressing needs. What we may come to understand is that the ideas underlying the solutions sought may have already been invented from "biological mentors".
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21st Century Cures Act: Seeking to Engage Patients
The 21st Century Cure Act, promises to promote the development and hasten the approval of new drugs and devices-particularly for treatments targeting cancer and rare diseases. The goal is to place the patient in the center of drug discovery and development.
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Benefits of Biodiversity to Humans
Biodiversity driven research includes bioengineering, searching for new medicines, improving human nutrition, bioremediation. Read more about biodiversity, implications for humans, and opportunities to preserve our world's biodiversity.

Patient Solutions
Following the patient journey from diagnosis, disease management including treatment choice and optimization, and eventual health management.
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JOHNS HOPKINS EPILEPSY STUDY IS FIRST RESEARCHKIT APP TO USE APPLE WATCH
--EpiWatch is an epilepsy research study that monitors seizure symptoms with Apple Watch to improve seizure detection, improve medication adherence and enhance quality of life for those who suffer from seizures.
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Monitoring Patient Activity
(Graphic: Business Wire)
A recent study by PatientsLikeMe and Biogen monitored walking activity in people with Multiple Sclerosis (MS). Participants were also surveyed about their experience with the study and attitudes about using a fitness tracker.

DiabetesMine™ Test Kitchen
A video product review site for and by people affected by diabetes. Patients can view and comment on reviews of diabetes related products used by fellow patients. A noteworthy model of patient engagement-allowing for a discussion of personally driven health management strategies.

RxEOB: Empowering Patients through Communication
A recent interview by Dr. Minna Damani, Director of CanBiotech Innovations of Mr. Robert Oscar, CEO and President of RxEOB revealed significant trends with respect to patient communication and stakeholder engagement.
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Exploring open innovation with a patient focus in drug discovery: an evolving paradigm of patient engagement
It is suggested in this article that patient engagement should occur further upstream during the drug discovery stage. ‘Lead patients’, namely those patients who are proactive with respect to their health, possess knowledge of their disease and resulting symptoms. They are also well informed about the conventional as well as non-conventional treatments for disease management; and so can provide a nuanced perspective to drug design.
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http://informahealthcare.com/doi/abs/10.1517/17460441.2015.1037271

FDA taps PatientsLikeMe to test the waters of social media adverse event reporting
PatientsLikeMe has announced a research partnership with the FDA as a way to generate adverse event reports.

The Specialty Care Model
Specialty pharmacies help close the communication and coordination gap by providing and supporting a care model to empower patients and better able to manage their health.
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mHealth Engages Heart Failure Patients
Patients who use mobile-based telemonitoring systems for heart failure (HF) self-management feel...
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 Health News   Show all: Health News

Radial access, same-day cardiac procedure could save $300 million annually

If hospitals can perform more transradial, same-day percutaneous coronary intervention, or PCIs, not only will patients benefit because it is associated with have less complications, but collectively, hospitals across the U.S. could save $300 million each year, according to new research.

Many cancer survivors change their prescription drug use for financial reas…

A new analysis indicates that many cancer survivors change their prescription drug use (including skipping doses or requesting cheaper medications) for financial reasons.

Mapping a path to better oral health

Dentists aren't the only people who influence how we take care of our teeth; our friends and family play a big role, too.

Adaptable model recommends response strategies for Zika, other pandemics

A new biological-behavioral-operational computer model could help policy makers choose the best intervention strategies to rapidly contain an infectious disease outbreak. The model is based on the dynamics of disease transmission across different environments and social settings, and provides critical information about how to mitigate infection, monitor risk and trace disease during a pandemic.

Study maps where US patients appear more ill than they are

In some areas of the US, medical providers consistently order more tests and treatments for patients than providers do elsewhere -- a fact that has generated considerable public debate. Now a new study suggests that these differences in medical practices influence how the apparent health of populations is measured across regions.

Physicians’ opioid prescribing patterns linked to patients’ risk for long-t…

At a glance: New research shows great variation among clinicians’ opioid prescribing practices and links physician prescription patterns to patients’ risk for subsequent long-term opioid use. Being treated by an emergency room physician who prescribes opioids more frequently increases a patient’s risk of long-term opioid use and other adverse outcomes. The results suggest that differences in clinicians’ prescribing habits may be helping to fuel the opioid epidemic sweeping the United States.

3 Strategies for Reaching the 'Silent Middle' in Population Health

2/16/2017 05:00 AM - Patient Engagement
More than two-thirds of patients are quietly moving toward chronic conditions, but they’re not engaged with population health programs.

When does a man say 'I'm the father'?

American men much more readily acknowledge that they are the legal father of a child born out of wedlock when the woman involved is more affluent, educated, and healthy. It also helps (slightly) if the baby is a boy, say researchers, after scrutinizing data from 5.4 million births.

One in four ER visits for eye problems aren't actually emergencies, study f…

Pinkeye isn’t a medical emergency. Neither is a puffy eyelid. But a new study finds that nearly one in four people who seek emergency care for eye problems have those mild conditions, and recommends ways to help those patients get the right level of care.

Communicating health risks in a post-truth world

Public officials faced with the tough task of communicating risk on contentious issues like vaccination or fluoridation -- where the actual risk is low but public concern remains high -- need to show that they care, demonstrate that they are taking action and strategically engage with the media.

Cardiovascular disease costs will exceed $1 trillion by 2035

By 2035, cardiovascular disease, the most costly and prevalent killer, if left unchecked, will place a crushing economic and health burden on the nation's financial and health care systems, a new study projects.

Sugar, salt, and fat taxes could save billions in health care costs

Australia could save AUD $3.4 billion (USD $2.3 billion) in healthcare costs over the remaining lifetimes of all Australians alive in 2010 by instituting a combination of taxes on unhealthy foods and subsidies on fruits and vegetables, according to a new study.

Shock from heart device often triggers further health care needs

Shock from an implantable cardioverter defibrillator (ICD) may trigger an increase in health care needs for many patients, regardless whether the shock was appropriate needed or not. Whether the shock was appropriate or inappropriate patients often underwent invasive cardiac procedures afterward. Programming strategies that reduce ICD shocks may reduce healthcare costs and improve patient health.

Mind the (osteoporosis treatment) gap

A new review, referencing key clinical studies, guidelines and audits, outlines the main global challenges (and their solutions) facing healthcare professionals and policymakers responsible for providing care to populations in relation to bone health and fracture prevention. It identifies four main areas/themes responsible for the treatment gap.

Intensive blood pressure control could prevent 100,000 early deaths each ye…

Researchers have projected that aggressively lowering blood pressure could help prevent more than 100,000 deaths in the US each year. Experts from across the country built upon the landmark Systolic Blood Pressure Intervention Trial which found that decreasing blood pressure to 120 mmHg compared to 140 mmHg reduced heart attack, stroke and death in people that were at high risk. Until now, the number of lives that could be saved was unknown.

Examining different accountable care organization payment models

Two new studies take a look at different accountable care organization (ACO) payment models.

Insurance status impacts complication rates after shoulder replacement surg…

Patients undergoing shoulder replacement surgery who have Medicaid, Medicare or no health insurance, had higher complication rates as compared to patients who had private insurance, research concludes.

New study re-evaluates the total burden of norovirus on the UK

The annual number of estimated number of norovirus cases annually in the UK is approximately 800,000 greater than previously estimated, new research concludes.

Chinese air pollution linked to respiratory and cardiovascular deaths

In the largest epidemiological study conducted in the developing world, researchers found that as exposures to fine particulate air pollution in 272 Chinese cities increase, so do deaths from cardiovascular and respiratory diseases.

Support for health professionals reduces unnecessary use of antibiotics in …

Dffective and safe ways to reduce unnecessary use of antibiotics in hospitals have been identified in a new study. Guidelines and policies that promote better targeting of antibiotics in patients who need them have the greatest impact when they are supported by the most effective ways to change doctors' behavior.

 Patient Engagement Reports   Show all: Patient Engagement Reports

The Patient Is IN: Pharma’s Growing Opportunity in Patient Services
Key Findings from a Survey of 200+ Patient Services Executives in the Pharmaceutical Industry


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