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 Patient Health and Engagement Blog   Show all: Patient Health and Engagement Blog


Visit CanBiotech's new patient engagement and engaged thinking community. Participate in the development of the concept of engaged thinking in health innovation and the identification of "lead patients".
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Redesigning the Patient Journey through Design Thinking
A design company was hired to speed up the diagnostics time for breast cancer patients in a Norwegian hospital. The result? A reduced waiting time by 90%.
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Being patient-centric in a digitizing world
A Danish pharma company’s strong customer focus and determined digital drive have important lessons for other businesses.
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Leveraging New Technologies for Better Diabetes Care
Mobile device apps and online portals can expand the number of people who receive diabetes care and optimize how they prevent and treat their diabetes. This form of diabetes care can cater to millennials who are accustomed to using technology to address their needs and to underserved communities that cannot easily access doctor’s visits.
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Lessons for Patient Driven Innovation: Rebuild Personas According to Your Next Product Innovation
By exclusively focusing on your persona’s one main need and trying hard to fulfill that need with your product, you can build the next feature with a more focused vision.
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Social Media and the Patient Experience
As patients continue to turn to online resources for health care information to guide their care decisions, it is becoming increasingly important for radiologists to engage with patients online via social media platforms.
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Important new cancer treatments approved by Health Canada marred by major provincial reality disconnect for patients
Patient access to innovative new cancer treatments seriously limited by provincial funding recommendations across Canada Health Canada recently conditionally approved an advanced new treatment option

What Pharma Can Learn from Patients: A Global Patient Advocate Survey
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The Patient Voice within Biopharma
Patient Leadership Councils (PLCs) within life science companies and other healthcare organizations aim to enable for the patient's voice to take root within biopharmaceutical organizations.
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It takes two to tango: how shared decision making can help patients and providers make better decisions together
Shared Decision Making
Thursday, September 15, 2016 at 1 PM in Paul Brest Hall, Stanford University.
You make decisions every day. Some are good; some are not as good. Did you know there is a science to decision making that can help people make better decisions more often? In collaboration with Eli Lilly, Medicine X will facilitate a half-day design workshop about improving decision making for patients and providers.
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Unique Patient Challenges & Support Solutions in Rare Disease
People who have been diagnosed with a rare disease share their stories, alongside a pharmaceutical executive and health psychology researcher; the authors further reviewed the most recent and relevant adherence and self-management research in rare disease.
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Rethink Partnerships with Patient Advocates
Listen to a panel discussion led by Cara Thompson, Director of Advocacy, Celgene, Tammy Russo, Patient Advocacy, Syndax, and Parisa Sanandaji, Associate Director of Patient Advocacy & Professional Relations, Boehringer Ingelheim focused on the most important pharma-stakeholder collaboration: pharma’s relationship with patient advocacy groups.
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Boehringer Ingelheim launches 'gamified' COPD initiative
The program
encourages and rewards patient driven disease management
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BMS reaches out to patients: The company’s Aspire program is attempting to bring BMS even closer to patients, while improving site relationships, operational analytics, and the value of data collected.
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Enabling people-powered health: Radboudumc and Saint Elizabeth Community Enterprise team up to accelerate and magnify global health innovation and impact.
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Stakeholders need to work together to embed patients in medicines R&D
Anton (Tony) Hoos – Head of Medical for Amgen Europe – explains why stakeholders need to work together in medicines development.
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Focus on the Patient Voice and Compassionate Use in Clinical Trials
Janssen is one company putting programs in place to make sure the patient voice is heard. One area in which the company is leading change in the industry is in the area of compassionate use.
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Patient Partnership Principles
The PatientsLikeMe Team of Advisors introduced the Partnership Principles, outlining ways to make the most of the relationships with the many people patients encounter in their health journey.
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Shared Decision Making for Successful Patient Engagement
The principal of shared decision making (SDM) promotes collaboration between clinician and patient among different clinical settings. A conceptual SDM strategy for improving patient engagement in neurology was created by researchers at the University of Maryland School of Pharmacy in Baltimore, Maryland, and presented at the 2016 annual meeting of the American Academy of Neurology (AAN).
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The April 2016 Health Affairs theme issue on "Patients' and Consumers' Use Of Evidence offers a comprehensive examination of the issues related to engaging patients more fully in decisions about health care delivery, and provides a number of examples of how researchers hope to provide patients and consumers with better evidence to choose among their health care options. A number of articles are freely available by PCORI
http://www.pcori.org/events/2016/health-affairs-briefing-patients-and-consumers-use-evidence

Patient Experience: The sum of all interactions, shaped by an organization’s culture, that influence patient perceptions across the continuum of care. – The Beryl Institute

Achieving Patient Engagement with Technology
By incorporating wearables and sensors, remote patient monitoring, caregiver collaboration tools into the model of patient care, it has become possible to dramatically increase patient involvement.
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3 Ways Technology Can Help Treat Patients as Consumers
Technology can play a key role in meeting the needs of both patients/consumers and healthcare system organizations.
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Listen Up: Surveying Patients To Shape Better Designs
Designing treatment spaces with patients.
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The Voice of Patients
Patient stories underscore the need for precision medicine
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Designing person-centered care for the patient journey
Critical is an understanding of the “patient journey” to source opportunities for patient engagement.
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Communicating with Patients
Learn about how making a few simple changes to our health care lexicon can help frame diagnoses in a more positive light and help patients establish a stronger sense of identity.
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Healthcare Industry Must Step up Efforts to Enable Successful Consumerization
US consumers appear ambivalent regarding what it means to be proactive or engaged in personal health, says Frost & Sullivan
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Precision Medicine: Patient-Centric R&D necessitating education, communication and engagement across diverse populations.
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Type 2 diabetes, hypertension, metabolic syndrome, obesity and cardiovascular disease, have a genetic basis and may be triggered by the interaction between a person’s genes and his/her diet.
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Novo Nordisk has made patient centricity a central focus of activities incorporating the concept in the organizational structure. A dedicated team focuses on improving patient care, education, engagement, and overall experience. At Janssen Research & Development, the company has developed a new scientific approach, called "disease interception", to not only assist patients living with the disease, but allow for intervention earlier to prevent progression to disease. Read more about knowledge sharing, patient programs, and new research techniques across the pharmaceutical industry as the patient centric drug discovery and development paradigm takes root.
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Patient Narratives
Patient narratives allow stakeholders to hear the voice of patients and understand their needs and expectations. Patients cite and share their experiences when asked to complete satisfaction surveys, interact on social media, on doctor review sights, and in compliment and complaint letters. What can we learn from patient narrative use during health service delivery; how can narratives be used to inform upstream drug design?
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FOOD LABELING INTERVENTION INCREASES SALES OF HEALTHY FOODS
The labeling and in-store promotion of both healthy foods and healthier low-sodium, low-fat, or lower-sugar-content food choices can increase sales of promoted food items, according to a study by researchers at Johns Hopkins University. The findings suggest an economically feasible model for promoting healthier food purchases and are published on the website of the Journal of Nutrition Education and Behavior.
“Many people, particularly those who live in low-income neighborhoods, have limited access to healthy foods. We wanted to develop an intervention that could help make healthy choices easier for consumers,” said Pamela Surkan, lead author of the study and assistant professor in the Department of International Health at the university’s Bloomberg School of Public Health.
The Eat Right-Live Well campaign was developed and studied by a collaboration of researchers from the Bloomberg School, the university’s Carey Business School, and the Johns Hopkins Center for a Livable Future.
Source: John Hopkins University
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The Diabetes UnConference
A patient-peer conference enabling for discussion, empowerment and health management.

“Future Signs”: How medical technology is disrupting pharma
Download the white paper to learn how to:
Adopt a risk based approach for a cheaper way to clean your data, ensure optimum data quality and patient safety
•Integrate real world and real time data for faster data generation
•Overcome rising R&D costs by utilising big data to identify patient sub groups
•Encourage patient participation by virtualising parts of trials, reduce patient burden and enhance data quality, with mobile and wearable devices

Biomimicry: What lessons can we learn from nature?
The ideas from nature may provide clues to addressing our most pressing needs. What we may come to understand is that the ideas underlying the solutions sought may have already been invented from "biological mentors".
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21st Century Cures Act: Seeking to Engage Patients
The 21st Century Cure Act, promises to promote the development and hasten the approval of new drugs and devices-particularly for treatments targeting cancer and rare diseases. The goal is to place the patient in the center of drug discovery and development.
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Benefits of Biodiversity to Humans
Biodiversity driven research includes bioengineering, searching for new medicines, improving human nutrition, bioremediation. Read more about biodiversity, implications for humans, and opportunities to preserve our world's biodiversity.

Patient Solutions
Following the patient journey from diagnosis, disease management including treatment choice and optimization, and eventual health management.
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JOHNS HOPKINS EPILEPSY STUDY IS FIRST RESEARCHKIT APP TO USE APPLE WATCH
--EpiWatch is an epilepsy research study that monitors seizure symptoms with Apple Watch to improve seizure detection, improve medication adherence and enhance quality of life for those who suffer from seizures.
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Monitoring Patient Activity
(Graphic: Business Wire)
A recent study by PatientsLikeMe and Biogen monitored walking activity in people with Multiple Sclerosis (MS). Participants were also surveyed about their experience with the study and attitudes about using a fitness tracker.

DiabetesMine™ Test Kitchen
A video product review site for and by people affected by diabetes. Patients can view and comment on reviews of diabetes related products used by fellow patients. A noteworthy model of patient engagement-allowing for a discussion of personally driven health management strategies.

RxEOB: Empowering Patients through Communication
A recent interview by Dr. Minna Damani, Director of CanBiotech Innovations of Mr. Robert Oscar, CEO and President of RxEOB revealed significant trends with respect to patient communication and stakeholder engagement.
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Exploring open innovation with a patient focus in drug discovery: an evolving paradigm of patient engagement
It is suggested in this article that patient engagement should occur further upstream during the drug discovery stage. ‘Lead patients’, namely those patients who are proactive with respect to their health, possess knowledge of their disease and resulting symptoms. They are also well informed about the conventional as well as non-conventional treatments for disease management; and so can provide a nuanced perspective to drug design.
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http://informahealthcare.com/doi/abs/10.1517/17460441.2015.1037271

FDA taps PatientsLikeMe to test the waters of social media adverse event reporting
PatientsLikeMe has announced a research partnership with the FDA as a way to generate adverse event reports.

The Specialty Care Model
Specialty pharmacies help close the communication and coordination gap by providing and supporting a care model to empower patients and better able to manage their health.
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mHealth Engages Heart Failure Patients
Patients who use mobile-based telemonitoring systems for heart failure (HF) self-management feel...
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 Health News   Show all: Health News

Nurses central to getting diabetes care off to a better start

Giving primary health care nurses a greater role in managing Type 2 Diabetes can significantly reduce delays in starting insulin treatment, a team of researchers has found. 

Researcher calls on the scientific community to defend individuals with dis…

The potential repeal of the Affordable Care Act (ACA) threatens to eliminate critical mental and behavioral health services for people living with autism and other disabilities.

Increasing minimum wage would reduce teen pregnancies

A $1 increase in the minimum wage would likely reduce the US adolescent birth rate by about 2 percent, according to new research. That would mean about 5,000 fewer births annually.

Diet and global climate change

Eating healthier food could reduce greenhouse gas emissions, suggests a new study. As it turns out, some relatively small diet tweaks could add up to significant inroads in addressing climate change.

Pro-pot arguments fly higher with likely voters

As more states consider legalizing recreational marijuana, a range of arguments for and against legalization is swirling around the national conversation. Which of these arguments resonate most strongly with Americans? It's the arguments that support legalization, according to a new study.

Trauma surgeons show 'profound' racial disparity in Philadelphia gun violen…

Researchers argue for more research on firearm injury, including the establishment of a national database on incidents of gun violence. The authors point to recent research showing that in Philadelphia, gun murders and injuries are much more strongly associated with race than neighborhood income levels.

Testing for hepatitis C virus remains low among baby boomers

A new report looks at testing rates for Hepatitis C virus (HCV) two years after the United States Preventive Services Task Force (USPSTF) recommended it for all baby boomers, and finds rates are still very low.

Two-thirds of Americans see docs who got paid by drug companies

A majority of Americans visited doctors in the past year who had been paid or given gifts by pharmaceutical or medical device companies, but very few patients knew about it, outlines new research.

Widespread conflicts of interest among patient-advocacy organizations uncov…

Over the past few decades, hundreds of patient-advocacy organizations have emerged in the United States, promoting disease research and influencing FDA and health insurer policies. Now, a new study reveals a large proportion of these organizations have funding or other connections with drug or medical device makers, yet do not adequately disclose the details of these connections or have publicly accessible policies in place describing how they manage them.

Should we commit to eradicate malaria worldwide?

Should we commit to eradicate malaria worldwide? For the author of a new report, eradication is the only equitable and sustainable solution.

Web Tool Lets Patients Review Docs

3/3/2017 05:00 AM - Patient Engagement
A Spectrum Health initiative is meant to improve satisfaction, access and transparency, says Christina Freese-Decker, Spectrum hospitals president.

OhioHealth Boosts Hospice Referrals

3/3/2017 05:00 AM - Patient Engagement
The average hospice length of stay for cancer patients nearly doubled when oncologists received data about their performance.

The shifting rationales for vaping

A new study harnesses social media data to explore -- in their own words -- the reasons people use e-cigarettes and why they started vaping in the first place. Nearly half of people say they began vaping in an effort to quit smoking cigarettes, while other reasons included their taste, the ability to use them indoors and their 'cool factor.'

Telephone-based collaborative care program eases anxiety

A telephone-delivered collaborative care program for treating panic and generalized anxiety disorders in primary care is significantly more effective than doctors' usual care at improving health-related quality of life, anxiety and mood symptoms, new research has found.

US workers without paid sick leave more likely to forego preventive health …

More than 20 million Americans have gained health insurance coverage through the Affordable Care Act (ACA) and do not have to pay for 15 preventive screenings recommended by the US Preventive Services Task Force. Yet, despite this advantage, many are not utilizing these lifesaving screenings and are contributing to this nation's soaring health care costs, which reached a whopping $3 trillion in 2014.

Physicians not prepared for male patients who perpetrate intimate partner v…

Family medicine physicians feel underprepared to serve patients whom they know are perpetrators of intimate partner violence, particularly if they also provide care to the victim.

Adolescents with autism four times more likely to visit emergency departmen…

Adolescents with autism spectrum disorder (ASD) use emergency-department services four times as often as their peers without autism, according to researchers. The findings suggest that youth with autism may need better access to primary care and specialist services.

Concerns over inconsistent palliative care provision across England

Palliative and end-of-life care are not being considered as core services by clinical commissioning groups (CCGs) in some parts of England, with a vast degree of variation across different services and regions, reveals a new analysis.

Collaborative diabetes clinic lowers health care costs

Researchers are running a Diabetes Intensive Medical Management (DIMM) 'tune up' clinic for complex type 2 diabetes patients. In a new study, the researchers report the clinic's economic benefits, which include an estimated cost avoidance of $5,287 per DIMM clinic patient over three years.

Care by physicians, non-physician clinicians does not differ in community h…

A new study examining patient health outcomes in community health centers found that nurse practitioners and physician assistants delivered care that was equivalent to care delivered by physicians.

 Patient Engagement Reports   Show all: Patient Engagement Reports

The Patient Is IN: Pharma’s Growing Opportunity in Patient Services
Key Findings from a Survey of 200+ Patient Services Executives in the Pharmaceutical Industry


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